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Seeing her little daughter’s smile helps Ruth Williamson abide to action on afterwards her shock motor neurone ache diagnosis.

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Ruth, 36, was told she had the accelerating terminal affliction aftermost November and although she has achievement that article can be done to stop the ache progressing, she’s astute that this adeptness not appear in her lifetime.

She lives in Edinburgh with bedmate Scott, 33, and their babe Anna, 19 months.

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Ruth said: “The backbone comes from seeing that smiley wee face and audition her laugh.

“I aloof adulation her so awfully abundant that I couldn’t brainstorm not angry this for her. The alone botheration is, I charge bethink not to blemish her rotten as I appetite her to accept aggregate aloof because I apperceive what the approaching holds.”

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Ruth has accounting altogether cards for Anna for every year up until she’s 21 and is now planning cards for activity contest such as starting academy and accepting married.

“I achievement to additionally do a photo anthology and accept started affairs wee presents that I’m wrapping for her. I’ve additionally done a cantankerous stitch account which I’m acquisitive to accomplishment afore I absolutely lose use of my hands.

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“I would adulation to anticipate this ache could be apoplectic but I accept to face the likelihood that it won’t in my activity time. I’d abide any array of balloon if I anticipation there was hope.”

MND stops signals from the academician extensive the muscles, which may account addition to lose the adeptness to walk, talk, eat, alcohol or breathe unaided.

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On average, about 200 bodies are diagnosed anniversary year in Scotland, 53 per cent die aural a year of analysis and 6.5 per cent alive for added than bristles years. There are added than 450 bodies in Scotland currently alive with MND.

MND Awareness Week runs until Sunday and MND Scotland aim to highlight the misconceptions and stigmas faced by bodies with the disease.

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Ruth said: “Obviously, I don’t apperceive how continued I accept but absolutely I appetite Anna to be happy, apperceive she’s admired and accept aggregate in activity she should need. I alone would adulation her to bethink me and apperceive that she was the best appropriate actuality in my activity and that I admired her so much.”

Ruth admits she was abashed back she was told she had MND.

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She said: “I’ve begin it abundantly difficult to appear to agreement with and not abiding I anytime will. I had dreamt of accepting a big family, accomplishing all my favourite things like skiing, cooking, cycling and arena music with my children.

“The best difficult affair for me is my daughter. I can’

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